“I’m sorry to tell you…”
It was July 13th, 2013, a day that will be forever ingrained in my memory. I was sent to the emergency department immediately following an MRI. Alone, l heard the terrifying words, “I’m sorry to tell you…you have a brain tumour”. A mother of three teenage children at the time, it almost ended my life. I am passionate about helping others not make the same mistakes I did during that year of my life. Crises come to us in many ways. How can we be empowered to survive and find our “new normal”?
It’s Brain Tumour Awareness Month in Canada. Let’s join together to raise awareness!
This is a list of common symptoms which, alone or combined, can be caused by a brain tumour (malignant or non-malignant). If you, or someone you know is experiencing any of them, consult a doctor. I ignored them for too long!
Behavioural changes
Cognitive changes
Dizziness or unsteadiness
Double or blurred vision
Frequent headaches
Hearing impairment
Morning nausea and vomiting
Seizures
Weakness or paralysis
Free resources can be ordered by mail from the Brain Tumour Foundation of Canada and supports are available for both patients and caregivers. Youtube also has webinars on a host of topics. There are over 120 different types of brain tumours, making treatment complex.
Although as many as 60% of children with brain tumours will survive, they are often left with long term side effects.
In May 2019 the Brain Tumour Registry of Canada was launched with the goal of collecting data on every malignant and non-malignant brain tumour in Canada. The first Canadian Survival Report is now available with excellent information which will drive research. The Foundation is committed to research that is changing treatment options and improving the quality of life for patients.
Every day 27 Canadians hear the same shocking words I did almost 7 years ago. On Saturday, June 27th Canadians from coast to coast will join together for our virtual community walks. My team, “The Tumour Raiders” is only one of hundreds across Canada.
“Turn May Grey ” has interesting meaning this year with hair salons closed. Many of us certainly are, in a way we never predicted! There are many ways to support: join or sponsor a team or individual for the walk in June, make a donation, share this information to raise awareness or cheer us on!